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Sheffield Sarcoma Support Group

The Sheffield Sarcoma Support Group (SSSG) was formed in 2009 by a small group of sarcoma patients with the support of the sarcoma clinical nurse specialists (CNSs) and consultants, and it remains a patient led group. Its members, including patients and their relatives/carers are drawn from a wide geographical area including Barnsley, Doncaster, Rotherham, Sheffield, North Nottinghamshire, including Worksop and North East Derbyshire, including Chesterfield. The SSSG is so named because its main meetings are held in the large committee room at Weston Park Hospital in Sheffield. Although the group is run by the chairman with the support of its members (including the CNSs), all members have the opportunity to input their ideas on the group’s activities.

The aim of the group is to allow patients and their relatives/carers to meet regularly, on a social basis, and to have discussions on almost any topic of interest. Discussions around sarcoma may be short and do not necessarily dominate the meetings. The SSSG meets on the second Friday of January, March, May, July, September and November. However, these dates may occasionally vary depending on circumstances.

The meetings are held at 6.30 pm and last for about two hours. The evening usually begins with a talk by a guest speaker, which forms the focus for the group to meet. The topics of the talks are wide-ranging and are usually of general interest to the members. We also have an occasional clinical meeting where a member(s) of the sarcoma medical staff reports on advances in sarcoma treatments and research, and inform the group of how patients are reviewed after clinic appointments.

The talks are followed by refreshments and general chat amongst the members of the group, which is where the real support happens.

Further details of the group’s activities may be obtained from the CNSs at Weston Park Hospital or from Barry Davis (barry.davis1848@btinternet.com) and John Beeden (johnbeeden47@btinternet.com).
 

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