Sheffield Teaching Hospitals Neuromuscular Service

The Sheffield Neuromuscular service is a Muscular Dystrophy UK Centre of Excellence and provides care and support to adults affected by muscle and nerve conditions. This service is available to people living in South Yorkshire, North Derbyshire, and North Lincolnshire. The service also sees patients from further afield who require access to specialist treatments or further opinions.

The multidisciplinary (MDT) service provides access to neurology, neurophysiology, muscle and nerve biopsy, neuropathology, cardiology, respiratory care, genetics, physiotherapy, neuromuscular care advisor, speech & language therapy, occupational therapy, orthotics, and wheelchairs & seating.

This webpage is for patients with Neuromuscular conditions:
  • Muscular dystrophies: Duchenne, Becker, Myotonic.
  • Myositis, metabolic myopathies
  • Neuropathies
  • Inflammatory Muscle conditions
  • Neuromuscular Junction disorders
  • Mitochondrial Disorders

If you have a diagnosis of Motor Neuron Disease, please visit:

Sheffield MND Care Centre
 

Clinics

Neurology and Multidisciplinary clinics

The main neuromuscular out-patient clinic is held on a Wednesday afternoon at the Royal Hallamshire Hospital in Sheffield. In additional to this there are specialist tertiary MDT clinics for myasthenia gravis, motor neurone disorders, hereditary spastic paraparesis, neuropathy, acquired myopathy, muscular dystrophies, and small fibre neuropathy.

Click here to see photos of the clinic

Spinal Muscular Atrophy Clinic

This clinic takes place on N-Floor at the Royal Hallamshire Hospital on a Monday afternoon and has been set-up to allow patients with SMA to access NHS England approved drug therapies and attend for regular review.

Other Specialist clinics within the Neurology field which also take place at the Royal Hallamshire Hospital include:
• Neurophysiology
• Neuropathology
• Neurorehabilitation

Care Advisor and Clinical Nurse Specialist Led clinics.
These take place on M-Floor Neuro Out-patients department at the Royal Hallamshire Hospital and Out-reach community clinics at Graves Leisure Centre.

MDT Community Clinics

These joint MDT clinics are delivered by the Care Advisor, Specialist Nurses, and Specialist Physiotherapists and take place at out-reach community venues, Graves, and Concord leisure centres. These clinics have been set up to allow improved access to Specialist MDT Neuromuscular services for patients.

The allow appointments for patients with more complex care needs. Specialist clinics include Duchenne Muscular Dystrophy (DMD) clinics and Myotonic Dystrophy Clinics but patients with any Neuromuscular Condition can be seen within these community-based clinics.

Please click here for Graves Lesiure Centre photos

Transition clinics

These take place at Ryegate Childrens’ Hospital in Sheffield. Patients who are ready to transition from paediatric to adult services are seen within these clinics. Adult and Paediatric Neurologists, Specialist Physiotherapists, and Care Advisors are present. These clinics provide an opportunity for the young person transitioning and their parents /carers to meet the adult team and ask any questions before their care is taken over by the adult service.

There are also dedicated neuromuscular clinics in the Inherited Cardiac Conditions and Respiratory services, please click on the below links for more information about these clinics:

The Neuromuscular Neurology Team

Professor Dame Pamela Shaw, Consultant Neurologist

Dame Pamela Shaw is a consultant Neurologist with a key medical interest in motor Neuron Disease, she does see some Neuromuscular patients within the Sheffield Trust in Neurology Clinics. More information can be found about Dame Pamela Shaw on the Sheffield Institute for Translational Neuroscience (SITraN) website: Motor neurone disease | SITraN | The University of Sheffield.

Professor Christopher McDermott, Consultant Neurologist

Professor McDermott is a Consultant Neurologist, with a special interest in MND and neuromuscular disorders, and a Co-Director of the Sheffield MND Care and Research Centre. He runs weekly specialist clinics (Tuesday and Wednesday) for the diagnosis, treatment and care of people living with neuromuscular disorders. He has specific expertise in motor neuron disorders, myopathies, neuropathies and myasthenia gravis amongst others. He is the Professor of Translational Neurology and head of the Department of Neuroscience at the University of Sheffield and is leading research projects on improving symptomatic management for patients with neuromuscular diseases and national clinical trials in neuromuscular disorders.

Dr Channa Hewamadduma, Consultant Neurologist

Doctor Channa Hewamadduma is a consultant neurologist with specialist interest in a broad spectrum of neuromuscular disorders such as Duchenne Muscular Dystrophy, Spinal Muscular Atrophy, Myasthenia gravis, Muscular dystrophies, neuropathies, Hereditary spastic paraparesis (HSP) and Motor neurone disease. He is the Co-chair of the Yorkshire and Humber Neuromuscular Network and a key committee member of the Adult DMD care guidance development committee. He leads clinical trials in several neuromuscular disorders including Duchenne Muscular Dystrophy, myasthenia gravis, and HSP at Sheffield Teaching Hospitals Foundation Trust.

Dr Esther Hobson, Consultant Neurologist

Dr Hobson is a consultant neurologist with a special interest in MND and other neuromuscular disorders. She runs weekly specialist clinics (Wednesday afternoon) together with the multidisciplinary team seeing patients with muscle and nerve diseases. She also runs a weekly clinic at Doncaster Royal Infirmary. She is involved with international clinical trials in motor neuron disease and has an interest in research which improves the care for people with long-term neurological disorders and their carers and family. She has an interest in education and her clinic is often attended by students of all disciplines.

Dr Theocharis Tsironis, Consultant Neurologist and Clinical Neurophysiologist

Dr Theocharis Tsironis works as a Consultant Neurologist and Clinical Neurophysiologist at the Royal Hallamshire Hospital, and an Honorary Senior Clinical Lecturer at the University of Sheffield.
He qualified as a Neurology Specialist and obtained an MSc degree in Advanced Computer Science/Intelligent systems at the Aristotle University of Thessaloniki, Greece. He worked as a Clinical and Research Fellow in the Epileptology Department in Bonn, Germany and later moved to the United Kingdom, where he was trained in Clinical Neurophysiology at the National Hospital for Neurology and Neurosurgery, Queen Square, London. Since 2017 he has joined the Neurology and Clinical Neurophysiology teams in Sheffield, with a focus on Neuromuscular Disorders, Movement Disorders’ Neurophysiology, Botulinum Toxin treatment, and Epilepsy. He has been involved in clinical trials in CIDP and motor neuron disease, as well as the education of regional and overseas trainees.

Pippa Jackson, Care Advisor

Pippa qualified as a Physiotherapist in 2002 and has worked in the community for much of her career, specialising in neurology and supporting patients to manage the challenges of living with long term conditions. She has worked as a Care Advisor on the Neuromuscular team since 2015.

Pippa is usually available at the neuromuscular clinic and sees patients in care advisor-led clinics and joint clinics with the physiotherapists. She can provide support and information on your neuromuscular condition and any aspect of daily life which may be affected. You can get in touch with Pippa on 0114 2713441 or email: sth.neuromuscularteam@nhs.net

Jenny Booth, Neuromuscular Specialist Nurse

Jenny qualified as an adult nurse in 2011 and worked in Oncology, Neurosurgery and Neurology, as well as in a voluntary clinic supporting refugees and other people struggling to access healthcare in London. They see neuromuscular patients in nurse-led clinics and can provide support and information around neuromuscular conditions. You can get in touch with Jenny on 0114 271 2441 or email: sth.neuromuscularteam@nhs.net

Joanne Brooks, Neuromuscular Specialist Nurse

Joanne qualified as an adult nurse in 2002 and worked in acute elderly medicine at the Northern General Hospital for 5 years. Joanne then went on to specialise and gained a degree in Palliative Care and has worked at both St Luke’s Hospice in Sheffield and the Doncaster Hospice over the last 15 years before joining the Neuromuscular service at the Royal Hallamshire Hospital in January 2022.

Joanne can provide support and information on your neuromuscular condition and any aspect of daily life which may be affected. You can get in touch with Joanne on 0114 2713441 or email: sth.neuromuscular@nhs.net

Tara Bradford, Neuromuscular Specialist Nurse

Tara is a Clinical Specialist Nurse with a background in Palliative Care and Cancer support. She has been part of the team since 2020. Tara sees patients in clinic and can be contacted on 0114 2713441 or email: sth.neuromuscular@nhs.net

Katie Nevin, Clinical Specialist Physiotherapist in Neuromuscular Disorders

Katie qualified as a physiotherapist in 2008. She has worked in acute neurology for most of her career at the Royal Hallamshire Hospital helping people with new neurological diagnosis and rehabilitation.

Katie joined the neuromuscular team in 2015 as a clinical specialist physiotherapist in neuromuscular disorders. Katie assists patients with these long-term conditions helping them to self-manage, understand their condition, prevent falls, live a healthy lifestyle, exercise safely and access the correct help and support in the community.

Katie has a physiotherapy and a co-ordination role within the Spinal Muscular Atrophy (SMA) clinic in Sheffield.
You can get in touch with Katie on 0114 2713441 or e-mail sth.neuromuscularteam@nhs.net

Lindsay Maidment

Clinical Specialist Physiotherapist in Neuromuscular Disorders
Lindsay Maidment qualified in Physiotherapy with a BSc with Honours in from Sheffield Hallam University in 2010 and has specialised in the area of neurological physiotherapy since 2014 with a key interest in neuromuscular disorders. She has also undertaken MSc level study at Sheffield Hallam University.

Lindsay joined the Neuromuscular Team in Sheffield in 2015 helping patients with self-management of their long-term condition, assisting patients to understand their neuromuscular condition, with exercise advice, and offers support in accessing local community services. She has a physiotherapy and a co-ordination role within the Spinal Muscular Atrophy (SMA) clinic in Sheffield. She also is a Combined Community & Acute Care Group (CCAG) Research Physiotherapist and contributes to the co-ordination and delivery of research within the trust.

You can get in touch with Lindsay on 0114 2713441 or e-mail sth.neuromuscularteam@nhs.net

 

 








 

 

 
 

Additional Information

How to access the Neuromuscular service

The service accepts referrals to the Neurologists via GP or other hospital Doctor.

Patients from South Yorkshire and North Derbyshire can self-refer for specialist Neuromuscular physiotherapy using the contact details for Lindsay Maidment and Katie Nevin above.

Please find Information leaflets for the team below:

Useful Links

Muscular Dystrophy UK (MDUK)

MDUK is the charity bringing individuals, families, and professionals together to fight muscle wasting conditions.

Their website offers information about the different Neuromuscular conditions, how you can access alert cards for some conditions and much more, see the link below for more details of the work that they are involved with and how they can support you:

CMT UK: The charity supporting patients with Charcot-Marie-Tooth and other inherited nerve conditions

SMA UK: Support for people with Spinal Muscular Atrophy

Support for patients and families living with Duchenne Muscular Dystrophy

Myaware: support and advice for people affected by myasthenia

Support for people affected by Guillain-Barre and Inflammatory Neuropathies (CIDP)

Hereditary Spastic Paraparesis support group

Myotonic Dystrophy Support group

Support for young people affected by muscle conditions

Muscle and Nerve Investigations information

Please find the Patient information leaflets below:

Treatment Information

Intravenous immunoglobulins (IVIG’s) and Rituximab Patient information leaflets can be found below:

On-going clinical trials in Sheffield & Internationally

As a trust we are keen to improve care for patients with Neuromuscular conditions. We contribute to and deliver many clinical trials in Sheffield. For more information regarding trials currently being undertaken in Sheffield contact your Neurologist or member of the Neuromuscular Team.

There are several national and international patient registries where you can register your interest in taking part in research. These are organised by diagnosis. Check here if there is one for your diagnosis
 

 

 
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