Motor Neurone Diseases and Neuromuscular diseases

How to access the Neuromuscular service

The service accepts referrals to the Neurologists via GP or other hospital Doctor.

The Sheffield Neuromuscular service is a Muscular Dystrophy UK Centre of Excellence and provides care and support to adults affected by muscle and nerve conditions. This service is available to people living in South Yorkshire, North Derbyshire, and North Lincolnshire. The service also sees patients from further afield who require access to specialist treatments or further opinions.

The multidisciplinary (MDT) service provides access to neurology, neurophysiology, muscle and nerve biopsy, neuropathology, cardiology, respiratory care, genetics, physiotherapy, neuromuscular care advisor, speech & language therapy, occupational therapy, orthotics, and wheelchairs & seating.

This webpage is for patients with Neuromuscular conditions:

  • Muscular dystrophies: Duchenne, Becker, Myotonic.
  • Myositis, metabolic myopathies
  • Neuropathies
  • Inflammatory Muscle conditions
  • Neuromuscular Junction disorders
  • Mitochondrial Disorders

If you have a diagnosis of Motor Neuron Disease, please visit:

Sheffield MND Care Centre

Clinics

Neurology and Multidisciplinary clinics

The main neuromuscular out-patient clinic is held on a Wednesday afternoon at the Royal Hallamshire Hospital in Sheffield. In additional to this there are specialist tertiary MDT clinics for myasthenia gravis, motor neurone disorders, hereditary spastic paraparesis, neuropathy, acquired myopathy, muscular dystrophies, and small fibre neuropathy. Click here to see photos of the clinic

Spinal Muscular Atrophy clinic

This clinic takes place on N-Floor at the Royal Hallamshire Hospital on a Monday afternoon and has been set-up to allow patients with SMA to access NHS England approved drug therapies and attend for regular review.

Other Specialist clinics within the Neurology field which also take place at the Royal Hallamshire Hospital include:

  • Neurophysiology
  • Neuropathology
  • Neurorehabilitation

Care Advisor and Clinical Nurse Specialist Led clinics. These take place on M-Floor Neuro Out-patients department at the Royal Hallamshire Hospital and Out-reach community clinics at Graves Leisure Centre.

MDT Community clinics

These joint MDT clinics are delivered by the Care Advisor, Specialist Nurses, and Specialist Physiotherapists and take place at out-reach community venues, Graves, and Concord leisure centres. These clinics have been set up to allow improved access to Specialist MDT Neuromuscular services for patients.

The allow appointments for patients with more complex care needs. Specialist clinics include Duchenne Muscular Dystrophy (DMD) clinics and Myotonic Dystrophy Clinics but patients with any Neuromuscular Condition can be seen within these community-based clinics.

Please click here for Graves Lesiure Centre photos

Transition clinics

These take place at Ryegate Childrens’ Hospital in Sheffield. Patients who are ready to transition from paediatric to adult services are seen within these clinics. Adult and Paediatric Neurologists, Specialist Physiotherapists, and Care Advisors are present. These clinics provide an opportunity for the young person transitioning and their parents /carers to meet the adult team and ask any questions before their care is taken over by the adult service.

There are also dedicated neuromuscular clinics in the Inherited Cardiac Conditions and Respiratory services, please click on the below links for more information about these clinics:

Contact the team

 0114 2713441 or e-mail sth.neuromuscularteam@nhs.net